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Вітаємо вас у Довіднику безбар’єрності

«У комунікації приховано набагато більше сенсів, ніж нам здається. Цей Довідник допоможе розкрити нові, додаткові смисли, коли в центрі уваги – людина та її різноманіття. І це стане першим кроком у формуванні нової етики спілкування».

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Олена Зеленська

Where to find support for parents of children with rare medical conditions

03.03.2022

Parents of children with severe orphan (rare) diseases can contact:

  1. The 24-hour hotline set up by the Ministry of Healthcare of Ukraine. The number is 0-800-60-20-19.

When you call the hotline, tell the operator your information: who you are, where you are from, what disease the child has and what help is required. Your request will be recorded and forwarded for prompt resolution. The Ministry of Healthcare will process the application and inform you about access to the necessary medications or facilitate their delivery to you.

  1. To the children’s hospital nearest to you.
  2. To your regional healthcare department (follow this link for contact details). You may be directed to the Western Ukrainian Specialized Children’s Medical Center in Lviv. In fact, the Western Ukrainian Specialized Children’s Medical Center in Lviv is where you should seek information if your child has a rare medical condition and requires medical treatment outside of Ukraine.

* Based on information provided by the Ministry of Healthcare of Ukraine.

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